I just spent Monday thru Friday with Benny and he is making remarkable progress since he came home. He seems happy to be home, disconnected from all the technical hardware, and free to wiggle and explore without limitations. He still has the cough and junk is his chest; his retractions are still there but mild; he is gaining weight again; and overall doing well. Of course, he still has the daily regimen of the nebulizer, some meds twice a day, and a routine of keeping him upright a 1/2 hour after nursing. We did visit Benny's Pediatrician on Tuesday , and she was quite amazed by all the testing done at The Children's Hospital. She also hopes for Benny to just outgrow the problem, and continues to follow his progress. Tomorrow, Benny goes back to Vahalla for a post hospital checkup, and perhaps a chest xray. And this Friday, an Early Intervention Specialist comes in to evaluate his development. So, perhaps Friday I will post again when there is some more news.
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