Benny Update

Before Jay and I left yesterday afternoon, Benny's team of Pulmonologists came in to discuss the results of the Upper GI series and the course of treatment. The Upper GI did not show any abnormalities. Benny's oxygen levels continue to be low without support, his wheezing continues, as does his retractions. They discussed following a course of steroids and a different antibiotic. It is all so frustrating because Benny has been down that course before. They need and want him to improve so they can decide if they want to scope his lungs to look for abnormalities along the way. It is a much safer procedure if Benny is breathing on his own. This particular group of Pulmonologist's said "this is not a preemie thing". However, it was stated that as a preemie, Benny did miss out on the immunities that are passed on from Beth in the last trimester. When he was born, he did not have any issues with his respiratory system so they feel that this is something that has developed in the past few months. They are constantly searching and changing course; different specialist have different opinions. Your head is in a whirl listening to all this.
Jay and I left, and Beth called when we were on the road. The "suck/swallow/breathe" technician/nurse was in. She listened to Benny's lung before and after nursing, and determined that there was some pooling (of breast milk) in his lungs. This could be the result of his rapid breathing or not, and they will observe again today. Then the Metabolic Doctors came in and they will do their workup which includes blood work and a recommendation to possibly revisit Cardiology.
I have not spoken to Beth this morning, so this could all change. As I was traveling home to Vermont, some other thoughts came to me. I called Beth and told her that with all the focus on Benny's care and health, we forgot that he is a 5 month old and perhaps we can treat him as such - read him some stories, play with rattles and other appropriate toys. Somehow, we got sidetracked with all the talk and medical stuff. So, my suggestions for those who will visit: some new board books, bright and cherry toys, fresh flowers for Beth, and perhaps a pot of meatballs for Ben to bring home.
I continue to be saddened and overwhelmed by this.
Once again, please do not take my writings as gospel, and I am doing my best to be a conduit of information. I am sure you all have your opinions and I certainly welcome any comments or suggestions.